When words are not enough

Do we have a mechanism to require people to respect the dignity of others? Do we in fact have a right to dignity?

 

Frances Butler looks at whether the concept of dignity could be legally enforced

In May, Sir Michael Parkinson became the Government’s dignity in care ambassador. He’s set to go on a national 'dignity tour' of care homes and hospitals. As he puts it: 'people have the right to expect a basic level of humanity and compassion'.

No one would disagree with that but as dignity ambassador what can Parky do about the disgraceful fact that, all too frequently, vulnerable people in care homes are being ill-treated, neglected and abused? Is talking up dignity enough or do we need action as well as words?

Dignity – a sense of self-worth – is inherent to the human condition. Dignity is what makes us feel good about ourselves and gives us self-respect. This is personal dignity but it does not necessarily exist in a vacuum. How much dignity we actually possess may be dependent on how we are treated by others. It is difficult to maintain self-respect in the face of ill-treatment or denigration.

The counterpoint to one’s personal dignity therefore is a recognition of the need to respect other people’s dignity and this has been a long-standing moral value in human society.

The law provides protection in certain situations where people’s dignity has been violated. In extreme cases, such as murder, rape and assault, criminal law bears down on the perpetrator. But many instances of lack of respect for people’s dignity do not reach the threshold of criminal law even though unacceptable exploitation, carelessness and neglect may be involved.

Do we have a mechanism to require people to respect the dignity of others in their dealings with them? Do we in fact have a right to dignity?

The Human Rights Act 1998 guarantees everyone in the UK protection of their human rights, as set out in the European Convention on Human Rights treaty. Essentially, all the legal rights set out there touch on people’s dignity because they concern how individuals are entitled to live their lives without interference from the state.

Certain rights such as the right to life, freedom from degrading treatment, respect for the person and freedom from discrimination are especially protective of human dignity - even though the word 'dignity' is not expressed in them. We can feel confident about this because Article 1 of the Universal Declaration of Human Rights 1948, on which the European treaty is based, states that 'all human beings are born free and equal in dignity and rights'.

The Human Rights Act makes public bodies and private providers of public services responsible for respecting people’s human rights. Put another way, this means that hospitals, care homes, schools, prisons, police forces, the armed services and any other institutions that are in a position to trample on people’s dignity, now have a legal duty not to do so.

The simplistic answer therefore is that, since the Human Rights Act came into force in 2000, dignity is no longer just a personal aspiration or a social norm but an enforceable human right. The effect is that the Human Rights Act can be used in cases of ill-treatment and abuse both by requiring the service providers to change their practices and by giving the opportunity to users and their families to say 'you have to treat me properly or else'.

The situation is, however, complicated. Michael Parkinson spoke of people’s 'rights' but not their 'human rights'. Why does he not explicitly refer to the human rights of care home residents and hospital patients if the Human Rights Act is there to back up his dignity campaign? Is it because he doesn’t know that the Act has anything to do with how people are treated in care homes or does he share many people’s sense that bringing in human rights will be counterproductive?

The lack of understanding and poor reputation of the Human Rights Act among the British public and in our national discourse is something that the Equality and Human Rights Commission is concerned about. Its ongoing inquiry is considering this issue and what to do about it.

Another complicating factor is that a legal claim to the right to dignity cannot always be easily resolved. Abuse of vulnerable people in care homes is universally reviled but the right to dignity can be claimed by both sides of such difficult moral issues as abortion and euthanasia.

The eminent jurist Professor David Feldman has questioned the usefulness of dignity as a legal right because he sees it as a 'notion that is culturally dependent and eminently malleable'. It is the judges who are able to take advantage of these deficiencies and Professor Feldman is concerned that a legal right to dignity gives 'too much power to courts to be paternalistic or moralistic'. There’s a risk that the right to dignity will become controversial and unworkable.

There are however several examples where progress has been made in advancing the concept of dignity to provide legal protection to extremely vulnerable people.

The courts have used the legal right to 'respect for the person' to require that severely disabled sisters be given the 'human touch' of manual handling as well as mechanical hoists, which their nurses were using for health and safety reasons but which offended the sisters’ dignity.

It has been used to fine a London borough for failing to re-house a severely disabled woman after social services had assessed her needs. In the case of Leslie Burke, who was suffering from a degenerative terminal disease, the judge made clear that his right to be treated with dignity continued even when he had lost consciousness.

These cases advance our understanding of how the Human Rights Act can affect situations involving people’s dignity by providing ground rules on how people should treat other people.

The idea that we all have a right to basic humanity and compassion is not just wishful thinking - it's a legal right to be claimed and enforced. Yet most of us aren't aware of this. What will it take for dignity to become a usable human right?

Frances Butler is a human rights policy adviser

9 Comments

I am 55 years young, joined the Royal Air Force in 1970,left in 1984, then worked overseas for the British Goverment via a prominent British Aircraft Engineering manufacturer; Paying Tax and NI for 30 Years, up until 2 years ago. I badly broke my foot, was flown back to the UK. I now have had 3 operations which did not work, nor remove the pain. I have now been classed as disabled. By not paying my NI contributions by one month I have been informed by the DWP I am not entitled to any benefit. I have also been informed by the Job Centre Plus, that I am not entitled to any benefit, as I have a partner. I feel I am being treated unlawfully by the government, as I am Persona Non Grata and must rely on my Partners income to survive. I have lost my job through my accident, which has now become a disability and unable to fend for myself. This is not just a feeling, but a reality that I have no Dignity or Individuality, as I must totaly rely on my partners meagre income to support me. Sorry, I am writing about myself, but there is a connection in the unjust world of discrimination that we live in. Is there any one out thair that feels the same about being persecuted and losing their identity , by simply living with and having a partner. The Government Must recognise, (the household income)removes the individuals right to be recognised and be seen as a person. BY Disabled Broke Almost suicidal Joe D

Joe Dorrian
17 Jul 2008

There is much talk about the stigna employers attach to disable people when trying to seek employment. The Government rabbits on (as usual) about what they intend doing to reduce the number of people on incapacity benefit but it won't work unless they create an "Employment Agency" (EA) of qualified staff (people who have been employed in industry) able to make essential visits to employers explaining the possibility of "service-users" becoming employed by them. This would go someway to breaking down the stigma whereby the truth on a person's CV about his/her a long-term absence through illness is the stumbling block. To make this happen, the EA (under the control of DWP) need to provide employers with a grant (a percentage of a service-users incapacity benefit) in order for them to take on a sucessful candidate. DWP would automatically provide the differential in incapacity benefit to the service-user. If and when an employer feels the need to take the service-user on full-time as a reward then the full incapacity benefit would automatically cease for both parties. Conditions would have to be imposed on fraudulent employers but the majority of good employers would benefit from the grant and the free labour it would provide. Mr M. Lewis FIET (Retired Electrical Engineer)

Mr Maurice Lewis
27 Jul 2008

There are a set of Human Rights Priciples known as the FREADA principles . They are Fairness-Respect-Equality-DIGNITY-Autonomy-. Some of these priniples have been in use in the Health service for many years and in particular the belief in dignity.Michael Parkinson might not make reference to Human Rights but to Rights -however it could be that he just does not realise that what he is supporting is Human Rights . This is undertstandable when you consider how the Human Rights Act is presented by the media.Lets not forget that even people from the Government have been critical of the Act (John Reid).But then thats because they wanted to infringe them as Mr Reid did and how the current Government DO. Dignity as a prinicple of human rights is important . Can we make it into a legal requirement -it already is -look at the code of conduct for nurses as well .

george sullivan
01 Aug 2008

My mother was in several care homes, because she has sjogrens, auto-immune problems and a wasting disease, and all the family worked and couln't stay at home to keep her company. The first home had appalling food, nurses who were unkind, and a system where, then in her late seventies, she had her personal needs met by young male nurses, which she found deeply embarrassing. After a series of small strokes she was moved to another home where they 'managed her' by giving her anti-psychotics, to keep her quiet because she demanded better care. She was rushed to hospital after being over-sedated, and then experienced a major stroke, a known hazard of the medication she was on. Now she is sinking beneath the waves, in an EMI, 'Elderly Mentally Infirm' home, lonely, bored and confined to a chair for all her waking hours, waiting to die. Dignity in old age...I don't think her very common experience of supposedly the very best standard of nursing homes can be described in those terms.

rosemary Rimmer-Clay
05 Aug 2008

It has been an interesting journey for me as a psychotherapist over the past 20 years. My initial training was loaded with discriminatory assumptions about people with chronic impairments; from perjorative assumptions that people with impairments "wanted to be sick and if they just changed their neurotic imbalances the somatised condition would become obsolete!" Or "Any person complaining against poor treatment in medical or social care was simply projecting their unresolved childhood issues with authority to the well meaning doctor/social worker etc!". Any number of appalling assumptions from and "expert" perceptions about the reality of any individual living with any form of impairment - whatever the source or cause! I wince at my superior attitude in those days and have sent a retrospective apology down the years to those people I will have hurt and offended. However being responsive I grew to learn from clients that lived within the social model of disability and I was favoured with a window into their reality.I ensured my training in inclusion and equal opportunities across the board and often shuddered at my internalised oppressive attitudes. Often I would feel as powerless to impact upon their social standing in our culture or mitigate the stressors and daily challenges of trying to function and maintain any sense of worth and self - let alone dignity- within a culture that opresses and excludes individuals who do not conform to the norm of acceptable human stereotypes within society. I learned to challenge a city council who would spend thousands of pounds upon a firework display but say that there was not enough money to enable people with impairments to attend let alone provide services to wash themselves or be treated as equally different! My final eye opener is to become gradually disabled myself to such a point where I fit the criteria of disabled within the DDA! Dignity? What is that? I struggle to maintain any vestige of self worth during the daily struggles to be treated as a human being!!! Dignity? When I am told by an occupational therapist that I can wait to empty the contents of my commode until such time as I can manage to take it upstairs to the lavatory myself! When agency support results in the abuse of my privacy within my own home? If I lose my mental health as a congruent response to constant external stressors then I am apt to be treated as a totally flawed and failed human being because it is I who carry the can of this cultures failure! No one can mantain mental and emotional health when dignity and worth is stripped from them on a daily basis! I have attempted to stimulate the British Association of Counselling and Psychotherapy to commission research into the impact of living in our culture with any form of impairment, sensory, mental and emotional, mobility - whatever! Research into the impact of domestic abuse upon people experiencing this in their lives has been undertaken, the same for other traumatic situations but the impact of the dismantling of human dignity and worth through the constant erosion of Self that occurs is still a collusive open secret of our culture! Yes, I have a right to dignity. I have the right to be treated with respect and I am not! I cling to what sense of self and worth I have and I see myself constantly beaten and broken not by my conditions but by the avoidable and reprehensible attitudes of my society that dismisses me and renders me invisible and worthless! So I suggest that the right to dignity is inherent to any human being. It is essential for any human organism to be able to thrive to her or his fullest potential. Indeed somewhere in Maslow's hierarchy of needs this is necessary to be able to acheive our highest. I relish any research or incentive that both shows the impact of being stripped of dignity and promotes the shift of our ailing and dysfunctional society ! Until then my life is made almost untennable and my mental, physical and emotional health is dismantled - and when I break and crack under the stress and congruent reactive depression sets in then I will be the one to be seen to have failed and it is I who will be handed out medication to manage being treated as less than human when my rigtheous anger demands that I am alright per se!!! I do not need to be medicated to tow the line and a human failure where I know my place and reduce my expectations to those limits imposed upon me and "be grateful", but my culture and society is in need of this medication! Dignity? In all my writings here I am actually rendered speechless to totally define the horrors of living with this deprivation imposed upon me and upon those other people who are even less articulate than I. My voice isnt heard nor are the voices of thousands of people who crumple under this oppression! I am just so happy to find this forum where I can speak with a modicum of certainty that I will be understood and heard . That the EHRC is tirelessly an advocate for human rights of all human beings irrespective of disabilties race gender or whatever else .

Katherine Demeter
07 Aug 2008

The concepts of respect and dignity have to start at home. I believe the way many parents routinely belittle and bully their children - and the bullying and fear underpinning the education system, whether it's boarding schools or state schools, sets the stage for the abuses we see against the very young, very old or anyone perceived as unable to stand up for themsevles. Some cultures are generally unkinder to children, old people and the disabled than our own, while some are far kinder. Different cultural expectations play a large part in the treatment of our elderly, since care work is so badly paid and often attracts people from other countries who have no grounding in what is acceptable here. Homes that are privately run are predominantly interested in only one thing - profit. However, a culture of bullying and abuse exists in many places of work, not just care homes, and seems to have increased steadily over the last 15 - 20 years. Hardly surprising with privatisation of services leaving fewer, less-trained and worse paid workers to deal with labour-intensive and often unpleasant tasks. The human spirit easily gets overlooked in the midst of all that.

Jane Rees
11 Aug 2008

Some of these examples given make me wonder why no legal action has been opened in the cases as described? Am I alone in thinking if my right to benefit was lost due to my NI contributions not having been paid for one month, I should take my employer for that month to court? Or that if a care home mistreated a relative I would take them to court? It is not a matter of dignity, it is a matter of duty of care in both cases.


12 Aug 2008

After a bitter disability discrimination case against my old employer which ended in a compromise agreement I feel my last shred of dignaty has been striped away from me. I cannot seek medical treatment due to psycological problems about going near hospital premises locally but cannot discuss these proplems to secure care elsewhere without breaking the compromise agreement. People who still work for my old employer publically humiliate me if they see me out and again cannot do anything about this as it would break the agreement My life is a misery and I can do nothing about this as it is lawful to be left in a position where a person has not enough dignaty left to hold theit head up high

I need to be annoymous for legal reasons
18 Aug 2008

I am worried at this time if my job will be available to me, if MY doctor says I can work with my disability, can the company say that this will not happen. I work as a bus driver, have for 12 years, I want to work, not go on disability. If I cannot do my job as a driver, is the organization obligated to offer me something, because of my service so far. I am concerned about being vulnerable with a job, and also vulnerable to public abuse, when the public sees you are incapacitated to an extent that you cannot protect or defend yourself. I want to work not take advantage of the (system) to get tax dollars. I pay taxes, but I had rather be a contributor not an abuser. I find myself staying at home, not going out, in fear of being abused or took advantage of because I am vulnerable at this time. Is this what a want to, fruitful citizen should have to worry about? No, we should not have to have a family member or friend with us at all times to hold our heads up with dignity, and comfort, and respect. I want to be a provider for my family for as long as I can. I am currently looking after my husband , who has Guillain Barre, and has been sick for five years, takes a treatment once a month to walk. He was in the hospital at one point, paralyzed, for a month. I missed one half day of work... At this point I had a stroke, went deaf in left ear, told by doctor hearing will not return. I have an option of accepting disability, because I cannot balance myself or have a procedure to destroy the part in the ear that causes the not being able to balance myself, this nerve is associated to vertigo. I am considering this procedure just to be able to work and help take care of my husband, because I have him insured. I shouldn't have worry about this. If I prefer to work and not take the easy way out, then I should have that option. But, we as vulnerable citizens do not have a choice because we do not know our options or our rights. Dignity is very important to me and my family. I take a dignified attitude towards others, because I was taught to be kind to all no matter what the situation or who the person may be, and I expect it, even though we don't get it sometimes. Remember us...

Diane Savage
24 Aug 2008

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